A Genetic Counseling Intervention to Facilitate Family Communication About Inherited Conditions
Clara Gaff, Jan Hodgson
JOURNAL OF GENETIC COUNSELING | SPRINGER | Published : 2014
This paper describes the development and implementation of the first intervention to facilitate family communication of genetic information based on a genetic counseling model of practice. The intervention is telephone-based and therefore designed to complement face-to-face genetic counseling consultations. It was developed by firstly reviewing the literature and a model of genetic counseling practice, leading to definition of seven core principles underpinning the intervention. A counseling framework based on these principles was developed through iterative role playing and review, tested for consistency with good practice and piloted on ten study participants. It was found to be feasible t..View full abstract
Awarded by National Health and Medical Research Council (NHMRC)
The authors would like to thank Loren Plunkett and Jean Paul for transcription of the role plays and pilot calls. Jean Paul also assisted with training of the genetic counselors. Our thanks to the genetic counselors involved for their enthusiasm and participation and to the GIF project steering committee (Jane Halliday, MaryAnne Aitken, Sylvia Metcalfe, Martin Delatycki, Susan Donath, Ingrid Winship and Loane Skene). The authors acknowledge the funding provided by the National Health and Medical Research Council (NHMRC) Project ID 491214 - Communication of genetic information within families (The GIF project).This work was supported by the Victorian Government's Operational Infrastructure Support Program.