Stakeholder Satisfaction with the Australian Rheumatology Association Database (ARAD)
Andrew M Briggs, Lyn March, Rosemarie van den Haak, Nino Hay, Lyndall Henderson, Bridget Murphy, Lainie Wengier, Marissa Lassere, Andrea Bendrups, Rachelle Buchbinder
The Patient: Patient-Centered Outcomes Research | ADIS INT LTD | Published : 2009
BACKGROUND: The Australian Rheumatology Association Database (ARAD) is a voluntary national registry for monitoring the long-term benefits and safety of biological disease-modifying anti-rheumatic drugs (bDMARDs) for inflammatory arthritis. Both rheumatologists and patients contribute data to the ARAD. OBJECTIVE: To evaluate the satisfaction of patients and rheumatologists with the ARAD. METHODS: Cross-sectional surveys were distributed to a random sample of 100 community-dwelling ARAD patients in 2007 and to rheumatologists attending the 2007 Australian Rheumatology Association (ARA) annual scientific meeting.Survey questions included items about the usefulness of the ARAD, workload for par..View full abstract
Awarded by NHMRC
The authors are grateful to the rheumatologists and ARAD participants who responded to the surveys and all members of the ARAD project team (Molly Bond, Chris Reid, Margaret Staples, Robyn Middleton, John Oldroyd) and the ARAD Scientific Advisory Committee. The ARAD is supported by an NHMRC Enabling Grant 384330 (2006-2010), Monash University (2006-2010), and unrestricted grants from Abbott (2003-2006), Amgen (2003-2007), Aventis (2003-2004), Roche (2008), Schering Plough (2003-2004), and Wyeth (2003-2006) paid to the ARA. Infrastructure resources for ARAD are provided by Cabrini Health, Royal North Shore Hospital, and St George Hospital. Andrew Briggs is supported by an NHMRC Postdoctoral Fellowship and Rachelle Buchbinder is partially supported by an NHMRC Practitioner Fellowship. The authors are also grateful to staff at the BSRBR who provided copies of their 2006 survey.