Journal article

Information provision for people with multiple sclerosis

Sascha Koepke, Alessandra Solari, Fary Khan, Christoph Heesen, Andrea Giordano

Cochrane Database of Systematic Reviews | WILEY | Published : 2014

Abstract

BACKGROUND: People with multiple sclerosis (MS) are confronted with a number of important uncertainties concerning many aspects of the disease. Among others, these include diagnosis, prognosis, disease course, disease-modifying therapies, symptomatic therapies and non-pharmacological interventions. It has been shown that people with MS demand adequate information to be able to actively participate in medical decision making and to self-manage their disease. On the other hand, it has been found that patients' disease-related knowledge is poor. Therefore, guidelines have recommended clear and concise high-quality information at all stages of the disease. Several studies have outlined communica..

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