Journal article
The Melbourne Family Support Program: Evidence-based strategies that prepare family caregivers for supporting palliative care patients
P Hudson, S Aranda
BMJ Supportive and Palliative Care | Published : 2014
Abstract
Background: A key component of palliative care is support for family caregivers. Although some family caregivers identify positive aspects, the impact is typically burdensome; they are prone to physical and psychological morbidity, financial disadvantage and social isolation. Outcomes of systematic reviews have highlighted the importance of investment in family caregiver intervention research. Purpose: To provide an overview of the development, evaluation and outcomes arising from of a programme of research (The Melbourne Family Support Program (FSP)), which focused on reducing the psychosocial burden of family caregivers. Methods: Developmental work involved a systematic literature review; ..
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Funding Acknowledgements
Many people have been involved in the programme of work outlined in this paper. Particular recognition is paid to Professor Kristjanson who provided invaluable academic mentorship, and Dr Hayman-White for her statistical advice in the pilot work. Multiple co-and chief investigators throughout Australia and overseas have provided valuable input. The research could not have been undertaken without the generous support of the clinical partners and administrative staff and research assistants. Sincere gratitude goes to the staff of The Centre for Palliative Care (c/o St Vincent's Hospital and The University of Melbourne, Australia) who have supported the decade-long investment in this programme of research. Finally, sincere appreciation to the family carers and palliative care patients who have provided their time (in extremely difficult circumstances) to inform the content and evaluation of the interventions. The following funding sources also need to be acknowledged: National Health and Medical Research Council, Bethlehem Griffiths Research Foundation and Beyondblue.