Journal article

Randomized Controlled Trial of a Telephone-Based Peer-Support Program for Women Carrying a BRCA1 or BRCA2 Mutation: Impact on Psychological Distress

Victoria M White, Mary-Anne Young, Ashley Farrelly, Bettina Meiser, Michael Jefford, Elizabeth Williamson, Sandra Ieropoli, Jessica Duffy, Ingrid Winship

Journal of Clinical Oncology | AMER SOC CLINICAL ONCOLOGY | Published : 2014

Abstract

PURPOSE: To assess the effectiveness of a telephone-based peer-delivered intervention in reducing distress among women with a BRCA1 or BRCA2 gene mutation. The intervention involved trained peer volunteers contacting women multiple times over a 4-month period to provide informational, emotional, and practical support. METHODS: Three hundred thirty-seven participants completed the baseline questionnaire, and those reporting interest in talking to other mutation carriers were randomly assigned to either the usual care group (UCG; n = 102) or the intervention group (IG; n = 105). Participants and researchers were not blinded to group allocation. Two follow-up questionnaires were completed, one ..

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Grants

Awarded by National Breast Cancer Foundation project grant


Funding Acknowledgements

Supported by a National Breast Cancer Foundation project grant (Project No. PG-08-01). B.M. received funding from the National Health and Medical Research Council of Australia (Career Development Award Level 2) and the Cancer Institute of New South Wales (Career Development Fellowship).