Journal article

Examining the quality of name code record linkage: what is the impact on death and cancer risk estimates? A validation study

Alexander Swart, Nicola S Meagher, Marina T van Leeuwen, Kun Zhao, Andrew Grulich, Limin Mao, Deborah Anne Randall, Louisa Degenhardt, Lucy Burns, Dianne O'Connell, Janaki Amin, Claire M Vajdic

Australian and New Zealand Journal of Public Health | WILEY | Published : 2015


OBJECTIVE: To examine the validity and impact of record linkage using name code compared to full name records. METHODS: A registry of 45,419 opioid substitution clients (1985-2007) was linked with national population-based death and cancer registries using registrant's name, date of birth, sex, state, postcode and date of death. Records were linked using full name and then using the first two letters of the given and surname (2×2 name code). Sensitivity and specificity were computed and regression analysis used to identify factors related to linkage accuracy. Standardised mortality ratios (SMR) and standardised cancer incidence ratios (SIR) were estimated. RESULTS: The sensitivity and specif..

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Awarded by Australian National Health and Medical Research Council (NHMRC)

Awarded by NHMRC Council

Awarded by Cancer Institute New South Wales

Funding Acknowledgements

Australian National Health and Medical Research Council (NHMRC; ID630531) and the Faculty of Medicine, University of New South Wales. Also supported by Fellowships from the NHMRC Council (MTvL ID1012141; LD ID510279 and ID1041742; AEG ID568819; CMV ID1023159) and the Cancer Institute New South Wales (CMV ID10/CDF/2-42). The National Drug and Alcohol Research Centre at the University of NSW is supported by funding from the Australian Government under the Substance Misuse Prevention and Service Improvements Grants Fund. The funding bodies played no role in the study design or conduct, data collection, analysis or interpretation of data in the writing of the article or the decision to submit the article for publication.