Feasibility of a Computerized Method to Measure Quality of "Everyday" Life in Children with Neuromuscular Disorders
Paula Bray, Anita C Bundy, Monique M Ryan, Kathryn N North
PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS | TAYLOR & FRANCIS INC | Published : 2010
Measurement of quality of life is becoming increasingly important in health care. Self-reported quality of life is the preferred method of gathering this information, but children are often excluded from this process, their input being replaced by parent-proxy report. This feasibility study tested assessment of "daily" quality-of-life by a self-reported computerized method in boys with neuromuscular disorders. To establish feasibility, the method was required to be engaging, consistent, and convenient. Ten boys, aged 9-16 years, were given a personal digital assistant (PDA) and prompted randomly, eight times/day for 1 week, to answer 19 questions about their daily experiences (including happ..View full abstract
Funding for research was provided through the John Yu Scholarship administered by The Children's Hospital at Westmead and The Douglas and Lola Douglas scholarship.