Journal article

Randomized trial of a decision aid for individuals considering genetic testing for hereditary nonpolyposis colorectal cancer risk

CE Wakefield, B Meiser, J Homewood, R Ward, S O'Donnell, J Kirk, K Barlow-Stewart, G Fenton, A Goodwin, P Zodgekar, L Andrews, J Koehler, A Overkov, M Peate, K Tucker, J Tyler, B Warner, T Dudding, M Gleeson, C Groombridge Show all

Cancer | Published : 2008

Abstract

BACKGROUND. Despite the potential benefits of genetic testing for hereditary nonpolyposis colorectal cancer (HNPCC) risk, individuals can find the genetic testing decision-making process complicated and challenging. The goal of the current study was to measure the effectiveness of a tailored decision aid designed specifically to assist individuals to make informed decisions regarding genetic testing for HNPCC risk. METHODS. In all, 153 individuals were randomized to receive the decision aid or a control pamphlet at the end of their first genetic counseling consultation. Of these, 109 (71.2%) completed the first questionnaire 1 week after consultation, whereas 95 (62.1%) completed the 6-month..

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University of Melbourne Researchers