Journal article

The challenges and suffering of caring for people with primary malignant glioma: qualitative perspectives on improving current supportive and palliative care practices.

Anna Collins, Carrie Lethborg, Caroline Brand, Michelle Gold, Gaye Moore, Vijaya Sundararajan, Michael Murphy, Jennifer Philip

BMJ Support Palliat Care | Published : 2014

Abstract

OBJECTIVES: Carers of patients with high-grade primary malignant glioma (PMG) are known to face extraordinary challenges, as they care for patients with multiple profound and often devastating physical, cognitive and behavioural changes. This study aimed to understand the supportive and palliative care needs in this setting, with a particular focus upon care at the end-of-life, which has hitherto been neglected. METHODS: This prospective qualitative study undertook in-depth interviews with 23 current and bereaved carers of adults with PMG. Carers were recruited from outpatient and inpatient services of two Australian metropolitan hospitals, including neurosurgery, oncology and palliative car..

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