Journal article
Adolescent Cancer and Health-Related Decision-Making: An Australian Multi-Perspective Family Analysis of Appointment Attendance and Involvement in Medical and Lifestyle Choices
Claire E Wakefield, Jordana K McLoone, Catharine AK Fleming, Michelle Peate, Emily J Thomas, Ursula Sansom-Daly, Phyllis Butow, Richard J Cohn
JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY | MARY ANN LIEBERT, INC | Published : 2011
Abstract
Purpose: The aim of this study was to explore the decision-making experiences of adolescent cancer patients and their parents and siblings for medical and social decisions and appointment participation, both during and after cancer treatment. Patients and methods: Seventy semi-structured interviews were conducted with 19 adolescent cancer survivors (mean age at diagnosis=13.3 years; average time since diagnosis=48.6 months; mean age at interview=16.1 years), 21 mothers, 15 fathers, and 15 siblings from 22 families. Interviews were analyzed inductively using qualitative research methodology. Emergent themes were cross-tabulated by participants' characteristics. Results: Mothers were most like..
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Awarded by National Health and Medical Research Council of Australia
Funding Acknowledgements
We thank Sarah Ellis (research officer) and Kate Lenthen (senior social worker) at Sydney Children's Hospital, and Dr. Kelly Mok (medical oncologist) at Prince of Wales Hospital for their contributions to this study. The study was supported by the Leukaemia Foundation of Australia and the Sydney Children's Hospital Foundation. Dr. Wakefield is supported by the National Health and Medical Research Council of Australia (ID 510421) and the Cancer Institute NSW.