Journal article

Predicting distress among people who care for patients living longer with high-grade malignant glioma

B Russell, A Collins, A Dowling, M Dally, M Gold, M Murphy, J Burchell, J Philip

SUPPORTIVE CARE IN CANCER | SPRINGER | Published : 2016

Abstract

PURPOSE: Caregivers of patients living longer with high-grade malignant glioma (HGG) have the unique challenge of caring for a person who may have cognitive impairment, along with cancer-related issues over a prolonged period of time. This study aims to detail the psychosocial profile of long-term caregivers, to describe their perceptions of the patient's quality of life and to examine predictors of their psychological distress. METHODS: Sixty-nine caregivers (48%) of eligible patients with HGG surviving over 2 years were recruited from two Australian metropolitan tertiary hospitals. Caregivers completed cross-sectional measures of psychological distress (GHQ-12), caregiver impact (FACQ-PC) ..

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