Journal article

The development and evaluation of a multimedia resource for family carers of patients receiving palliative care: A consumer-led project

Kristina Thomas, Gaye Moore



OBJECTIVE: Previous intervention research has shown that group education sessions for carers are effective but not always feasible due to the demands of the caregiving role and the difficulty in getting carers to attend. This project was a consumer-led research initiative to develop and evaluate a multimedia resource (DVD) providing information and support for carers of people receiving palliative care. METHOD: Eight carers were recruited from a community palliative care service to form a steering committee for the project. In collaboration with two researchers, the committee discussed the topics that would be included in the resource, developed an interview guide, participated in the filmed..

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University of Melbourne Researchers


Funding Acknowledgements

This project was funded through a consumer grant from the Victorian Cancer Agency. We would like to acknowledge the following individuals and organizations for their contributions to the project:r - the Carer Steering Committee,r - the carers and health professionals from Melbourne City Mission Palliative Care for participating in the evaluation of the DVD,r - Sally Brown and Jane Groom from Melbourne City Mission Palliative Care for their direct input and support,r - Joanne Giles (Producer) and The Educational Resource Centre at the Royal Children's Hospital, Melbourne.