Engagement in a program promoting lifestyle modification is associated with better patient-reported outcomes for people with MS
Emily J Hadgkiss, George A Jelinek, Keryn L Taylor, Claudia H Marck, Dania M van der Meer, Naresh G Pereira, Tracey J Weiland
NEUROLOGICAL SCIENCES | SPRINGER-VERLAG ITALIA SRL | Published : 2015
There is increasing interest in patient-centered approaches to chronic disease management and prevention. For people with multiple sclerosis (PwMS), patient empowerment plays a role in improving a range of health-related outcomes. This study aimed to compare health-related quality of life (HRQOL), fatigue, and depression risk between people who have and have not attended a week-long physician-led residential educational retreat or accessed other self-help resources (a book and online content) that foster patient empowerment including the adoption of healthy lifestyle behaviors. PwMS were recruited to the study using online platforms and asked to complete a comprehensive online survey. Data f..View full abstract
Prof Jelinek would like to thank all the volunteers who support the Overcoming Multiple Sclerosis online content and residential retreats. The research team would like to thank the participants of the HOLISM study for their ongoing support. This study was funded by the Linda and Tony Bloom Foundation and the Horne Family Charitable Foundation.